- Davis had his annual bladder/kidney tests. They all still showed completely normal bladder and kidney function. Dr. Pinto's word was "perfect!" YAY! But, they also still showed that the sphincter that would give him the ability to "hold it" does not work. So...they still believe he will never be truly potty trained, but there are ways around that. They are permanent, and require surgery, and they won't even consider doing anything until he is at LEAST 5. So, mark that one off the list, at lease we still don't have to cath him! :)
- He also had another appointment with Dr. Roberts (neurosurgeon). He is beyond pleased with Davis' progress, development, and recent growth. He doesn't want him wearing the little braces that the PT ordered. He said he's doing so well without them, using them would actually hinder proper development because they are a crutch. He is still wanting to keep a VERY close eye on his head. It's HUGE! He said it could very likely be that he just has a big noggin, but he still wants MRI's every 3 months just to make sure we're not headed toward a shunt.
- He had his annual appointment with Dr. Messer (orthopedics). He was beyond pleased as well. He watched D walk, and said the same thing Dr. Roberts said about the braces. He said he hasn't seen a child with spina bifida have such normal function all the way down to his toes. He wants to see him again in 6 months to make sure he's "walking well and trying to run." :)
- We went to California for a mini vaca memorial day weekend. D loved taking off and landing...in fact he said "Weeee!" going up and down each time. He LOVED the beach, Disneyland, the San Diego Zoo, and Sea World too! I, however, am not so fond of Disneyland anymore. We handed the camera to one of the employees to take a picture of all of us with Mickey Mouse, and afterwards, he didn't even wait for anyone to reach out to take it...he just DROPPED it on the ground! RUINED. I was/am furious! They felt $100 should cover a new one (because that's about what you can buy a used one just like it for). A new one was $300...we HATE it. So, we also paid $200 to have the old one repaired, but they said it could take 6-8 weeks. *sigh* So, we have no cute pictures of soooooo much stuff! We're missing so much! Again, *sigh.*
- While I speak about missing stuff...I have no photographic proof of his newest skill. WALKING!!! Now, I don't mean all the time. I mean, consistently he takes 2-3 steps at a time, and several times he has taken FOUR STEPS ALL BY HIMSELF!!!!! We have been doing some serious celebrating around here!!! :)
- One last thing...he is finally at an appropriate weight! YAY! He now weighs what they wanted him to weigh by his birthday, but...only 2 months late is good enough for me. He's still now eating/drinking very good, but the special milk stuff they put him on is really working. It has 560 calories for every 8 ounces. Talk about condensed! And, he seems to like it...sort-of.
The Walk-N-Roll is only a month away! We are so far from our goal this year! PLEASE pop over to my facebook page, click the link, and donate! It's a wonderful organization and does so much to help spina bifida families! No amount is too small...PLEASE help support my sweet little miracle and others just like him!!
1 comment:
Yay for all those positives, Davis!!!! We will continue praying. Keep up all the good work!
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